Wednesday, February 12, 2014

What a difference in a year!!

It is defiantly interesting to see what a difference a year can make in a person’s life.

Here is a picture from February 14, 2013.

 It was taken the day after what is quite possibly the worst day of my life. At the time Nate had been in the hospital almost two weeks and had been recovering from his pneumonia and there was talk on the 12th about how he would be moved to a regular room and most likely discharged by the weekend. Well that all changed in the early morning of February 13th, when I was awoken by yelling and footsteps. I actually thought something was going on in the room next door and I remember thinking the nurses needed to get out of my room and go there. It was around 5am and it took me a few minutes to realize that the alarms were actually going off in our room and I was trying to process what was going on. Luckily a nurse who we were very familiar with came and sat by me and told me that for some reason the high flow oxygen was not working for Nate and that they were trying to bag him to get him to start breathing again. I distinctly remember asking her, if I needed to call Chris and tell him to come and her saying No I think were ok. Well 10 mins later his oxygen was back up and his heart rate was steady so I stepped into the hall to call Chris to let him know what happened. By the time I called him, the code alarms were going off and the nurse told me to tell Chris to get to the hospital ASAP. I walked into the room as the fellow looked at me and said we have no other option but to intubate him to try to save him and I was like ok then do it stop talking. Long story short, that intubation eventually lead Nathan to getting his trach about 6 weeks later when we had run out of other options. It’s funny looking back at the picture, because at the time I was very reserved about sharing photos of him looking so sick because I was concerned how others would feel. Now when I look at those photos all I can think is wow, God is Good and my son truly is a miracle! My perspective has defiantly changed this year and where last year at this time we were honestly looking into the logistics of how we would bury our son (who remember at the time, was technically still our foster son) to this year where we are awaiting the birth of our little girl, Amelia. I’ve told many people that God is giving us Amelia at this time of year so that it can be happy time instead of time filled with dreaded memories.


This is a photo taken of Nate yesterday:


It is unbelievable to think of everything he has been through this past year and how far he has come. Sometimes when he is doing so good, I forget that no he is not cured by any means and that he is still suffering from several issues including pulmonary hypertension. Luckily we have an amazing team of specialist that are constantly impressed by him and a group of therapist and nurses that I can’t imagine our life without!